By Michelle Love, RMHC of Central Ohio Family
I tell people, you never think it is going to happen to you. I remember when my children were young, sitting around talking with friends, hearing about a precious child and their family who was going through a medical issue, and I would think to myself, “I just couldn’t do that.” Then one day, out of nowhere, our third child, Christin, got sick. That sickness has turned into a lifelong journey.
A few days before our daughter turned 5 years old, I got a phone call from a friend who had just visited, saying how sorry she was because her children had just come down with the flu and she was afraid they had given it to us. I told her not to worry and when our children did get sick, I thought, “No big deal, it’s just the flu.” I was wrong because Christin’s “flu,” her sickness, was not like that of her brothers.
A trip to our doctor revealed that Christin was dealing with something much bigger. I will never forget our pediatrician looking at me saying, “Michelle, you have a very sick little girl.” After being sent to our local children’s hospital, our daughter was diagnosed with bilateral duplicated renal systems, and during an exploratory surgery, we learned the condition was much more complicated than we had originally thought. Of Christin’s duplicated kidneys, one was not functioning and one was misconnected. All of which was causing her severe kidney infections. Our daughter underwent another surgery to correct the kidney problems and after a long hospital stay, we returned home full of hope that all of Christin’s medical issues had been fixed. However, it didn’t take long before our family realized something else was wrong. Multiple issues were revealed through more testing, but one in particular stood out – we learned Christin also had a tethered cord. This meant her spinal cord had limited movement and as a child with tethered cord grows, they can develop a variety of neurological or other symptoms.
We live in North Carolina surrounded by wonderful doctors and hospitals and for four years they tried different treatments, surgeries, and medicines to try and help Christin. Her symptoms got better but it was still not the quality of life we had hoped for her. Then one day, one of our doctors came to me and told me that she was sorry, there was nothing more she could do for Christin. She wanted to refer her to Nationwide Children’s Hospital in Columbus, Ohio.
This was such a new thing for me. We had never had to travel for Christin’s care and it was scary to think that we were going to have to go to a new state and a new hospital to meet new doctors and try new treatments. On a cold and snowy day in February, Christin and I got on a plane and flew to Ohio. I remember landing, getting in a cab, and looking at my daughter, not realizing our lives were about to change forever when we pulled up to the Ronald McDonald House. When we walked through the doors we were greeted with the most caring smiles, we were surrounded by people who were going through the same things as we were, and these strangers that we were meeting for the first time were going to become our family.
When you are walking through a medical journey away from home, the Ronald McDonald House is there to walk beside you. They think of the practical things, like food, laundry, and a place to sleep. They also think of the FUN! When you look around the Ronald McDonald House, all you will see are smiles, children and their families running around giggling, playing, and having a good time. The Ronald McDonald House is a place where families can go to get away from their medical issues for a moment and focus on being a family.
I am so thankful for all those who support this incredible House. We are humbled and blessed to know that people we will never meet are supporting us as we walk through these difficult medical times, by supporting our home away from home, the Ronald McDonald House.
When people ask me “What does the Ronald McDonald House mean to you?” I always begin to tear up because it is so hard to put into words what they mean to us. I wish people could read my heart. I believe our little girl said it best. One day, when Christin was asked the same question, she looked at me and with biggest smile, said, “The Ronald McDonald House—it’s home!”
This Mother’s Day, please remember the mothers staying at the Ronald McDonald House as they care for their seriously ill child. You can make a difference in their lives by supporting this wonderful organization. Please make a donation today. Thank you for supporting our home away from home and the brave children and families who live here.
All our love,
Jonathan, Michelle, Brooke, Stephen, Christin, and David Love