10-year-old Marcello Cervantes, a young gymnast from Tampa, suffered an injury playing football. He’s a tough kid, so he thought nothing of it. But his mom, Jeannette, noticed him sitting in a strange way and took him to a local hospital. After uncertainty as to what exactly was afflicting Marcello, Jeannette did some research online. Based on an intuition Jeannette had, she and her husband, Marco, decided a doctor at a children’s hospital in Columbus might be best able to help Marcello. Soon, they were making plans to travel to Nationwide Children’s Hospital. When making preparations to come here, someone in the doctor’s office recommended the family stay at our Ronald McDonald House. Marcello was so thankful for the opportunity his family had to stay at our House, that he decided to have fundraisers to raise money for RMHC before even leaving Florida. Click below to watch our interview with Marcello & Jeannette.
We often get messages of gratitude from parents of patients through our social media channels such as Facebook. Along with those messages, we sometimes get happy pictures of the patient too. We would like to share some of those messages and pictures so you, our supporters, can see the impact you have on families’ lives.
Earlier this month, Jill Peters sent the photo above and sent the unprompted comment, “thank you all so much for making our week long stay so much easier and more comfortable. we really appreciate the convenience of being across the street. the free snacks, meals, and laundry make a stressful situation so much easier! we truly appreciate everything!!”
Parents often write to us offering to fundraise for our Ronald McDonald Jenna Acord Riffle writes, “My sons 1st birthday is coming up and we spent the first 3 almost 4 months of his life living at the Ronald McDonald house. Do you have a list of things you need? We are going to ask for a donations instead of gifts.” Happy birthday to Cruz Robert Clyde Riffle.
Jennifer Kozlik, who describes herself in her Instagram bio as, “Mom to a micro preemie, case manager for county boards of developmental disabilities, super grateful wife/daughter/aunt/sister, and all-around blessed,” posted the beautiful picture below and this comment just before New Year’s Eve last year on Instagram:
“Thank you @rmhcofcentraloh !!! Our Macy has come so far…from #27weekpreemie to #goinghome ❤️ @rmhcofcentraloh made it possible for us to be right across the street from @nationwidekids ; which made it possible for us to take care of our #nicubaby instead of being in the car for 4 hours a day! The staff were always so wonderful, the volunteers so giving, and the whole building so warm and inviting. You take care of the families in the most generous and thoughtful way! We will forever be grateful to all of you, and will give back in any way we can!”
Debbie Morgan reached out to us to tell us about one of her favorite pictures of her daughter, who did not survive. Debbie says, “Thank you for all you do! Our family stayed at many different Ronald McDonald Houses for years while our daughter was alive. This organization has helped MANY FAMILIES and I am forever grateful for what you have done. One day we were coming our of Children’s Hopsital from an appointment and Ronald McDoanld was outside dancing in the rain. IT was the neatest thing and I still have a picture with . him and my daughter, Katelin. It is truly one of my favorite pictures. God bless you all and you are in my prayers!”
Adrianna Schoonover offered to donate some of her time to the Ronald McDonald House after having stayed at our House for over 2 months. “Is there a place to register for volunteering, in the future once covid-19 is over? My son was born in July, 10 weeks early. We spent 69 days at nationwide, and the Ronald McDonald house was a life saver during that difficult time. ❤️❤️”
Debbie Cunningham Weihl messaged us to say, “We stayed there for 91 days while my Granddaughter was in NICU at OSU. We have given back in several ways over the past 4 years but want to give more.”
Nicole Cochran needed to stay at the Ronald McDonald House when her daughter, Brooklyn, was taken to the NICU at Nationwide Children’s Hospital in 2017. Now, Nicole is staying with us again now that her three-week-0ld son, Sydney, is staying in the same NICU. She talked with us about how different it’s been staying at the house under “normal” times and staying at the House during the pandemic. Click the image above to watch her tell us her story.
Laikyn Howard was born to Jenna and Jeff Howard at 24 weeks and five days. She’s now ten weeks old. Laikyn is another modern miracle. After the couple spent the first 5 weeks at their local hospital’s NICU in Huntington, West Virginia, Laikin was transferred to the NICU at Nationwide Children’s Hospital. Fortunately, when Jenna learned her baby would be going to the world-renowned hospital in Columbus, she already knew where she would be staying.
Jenna had learned about the Ronald McDonald House years ago from a friend who works in the development department at the local House in Huntington. In fact, Jenna says she and her husband have made donations to the local House and Jenna has often volunteered her time with a group at the House back home, even bringing Laikyn’s 9-year-old and 5-year-old sisters to help cook meals for families staying there. “When we had an idea we might be transferred to either Columbus or Cincinnati, I had reached out to her and asked her if they were open…if they were taking guests…if there was a waiting list,” Jenna said. “I told her I never thought I would ever need a Ronald McDonald House and she said to me, ‘If I could only tell you how many times people say that. You never know you’ll need it and you get more of an appreciation for it, especially when YOU need it.’”
When it comes to convenience for families with a child in the hospital, Jenna pointed out that it’s such a relief to be at a Ronald McDonald House so close to the local children’s hospital. “We just keep one car and my husband goes back and forth and it’s just easier for us right now, so I can walk wherever I need to go. And with them providing the meals, that’s another huge thing.” Jenna said.
There have been some major changes at hospitals and Ronald McDonald Houses since the pandemic arrived. One major change at Nationwide Children’s Hospital and our Ronald McDonald is the inability for siblings to be able to visit, which can be hard on a family. Knowing their daughter would be in Columbus for a long time, the Howards made up a schedule so Jeff could continue to work back in Huntington but drive up to Columbus to stay at the House every other weekend. That would give Jenna time to go home and see Laikyn’s sisters. Of course, Jeff also comes up for major procedures at the hospital too. Fortunately for Jenna, she was already a tele-work employee, so she finds working from the room in our House very easy. Jenna said she especially appreciates the meals served at the House which allows her and Jeff to refrain from possible exposure to COVID-19 at a public grocery store or restaurant.
Jenna does look forward to the day when she’ll be able to bring Laikyn’s sisters to the House to show them where they’ve been staying. “We’ll be up here for appointments. Maybe they’ll have restrictions lifted. I do think one day down the road, hopefully, we’ll get to show them where we’ve stayed because right now, they can’t picture where we’ve stayed,” said Jenna. One thing’s for sure, she added, the family is certain to keep supporting Ronald McDonald House Charities now that it’s so much a part their family. “We have always been supporters and we’ll be supporters for life because you don’t realize how much it’s appreciated and needed until you’re faced with it. I had two perfect pregnancies and went into pre-term labor with her and it came out of the blue. You never know when your going to be faced with needing something.”
Kourtney Kilner and her daughter, Annika have been have been coming to our House for three years. Kourtney says they always feel welcomed and safe at the Columbus Ronald McDonald House. Kourtney & Annika were recently featured in a video greeting to golfers at this month’s 34th Annual RMHC Golf Tournament. Click the image below to hear Kourtney talk about their experience coming to the Ronald McDonald House during these especially stressful times.
Sarah & Adam Martin of Talladega, Alabama are often on the road with their two young sons. They travel around the country so Colt can ride youth motocross competitions. But the trip to Columbus is never very easy. The family has been coming to Nationwide Children’s hospital since October of last year so Colt’s younger brother, Mason, can get the care he needs. Describing how it felt as she and her husband looked at what lay ahead for Mason, Sarah explained, “It is a scary and hopeless feeling to not understand what is happening to your child. Especially when they are so young and cannot just tell you exactly what/how they are feeling.”
Mason was diagnosed with Chiari Malformation and Tethered Spinal Cord at Children’s of Alabama. Chiari Malformation is a condition in which brain tissue extends out of your skull and pushes on your spinal cord. Tethered spinal cord syndrome is a neurological disorder caused by tissue attachments that limit the movement of the spinal cord within the spinal column. The Martins were referred to Nationwide Children’s hospital during their journey to find out Mason’s diagnosis. Sarah said, “We had been trying to find a doctor to help Mason for two and a half years before we were referred to Dr. Leonard. Mason had de-tether surgery in October 2019 and decompression surgery for his Chiari in January 2020.”
When planning for the first surgery, the Martins found out about the Ronald McDonald House. “It was great having somewhere to stay to close to the hospital. They make you feel at home and Mason loves the playrooms,” Sarah said with delight. “We were there during Christmas last year and he got to see Santa. The House helps Mason feel more comfortable.”
Mason’s parents believe staying at the House helps Mason decompress after a stressful day seeing doctors. Referring to the trips to Columbus, Sarah said, “He was happy to be there, just not so much the hospital. There were wonderful people that would cook for lunch and dinner was so great. After Mason’s second surgery, he wouldn’t eat. I remember there was a restaurant that came in and cooked different pastas. Mason would not stop eating and they were so sweet to him.”
Mason likes to get his bicycle out of the van full of motorbikes and equipment that the family sometimes brings when coming to Columbus and, fortunately, the House has a big back yard for riding around. “I think Mason loves dirt bikes more than his brother, ” Sarah joked. “Mason loves motorcycles more than anyone. I feel like anywhere we go Mason has to have his motorcycles and is always racing.” It seems Mason really looks up to his older brother. “My older son, Colt, got his first motorcycle at three-and-a-half years old and started racing when he was five. In 2018, he won the Loretta Lynn National Championship. Colt is 9 years old now and we are heading back to the National Championship in about 4 weeks for the fourth year in a row.” Sarah pointed out that the motocross community is like a huge, extended family for Mason and the family has made many friends through the sport. “Motocross is a family atmosphere and there is nothing like it,” Sarah exclaimed. “Mason likes to yell at his brother and tell him to go faster or jump higher. He also loves helping his dad work on the bikes. All he wants to play with is dirt bike toys, be at the dirt bike track, and ride.” When it comes to taking Mason on the road for races, Sarah says there’s no place he would rather be. “Mason has a high pain tolerance and he fights through the pain most days to be able to play with his dirt bike toys and watch his brother race. Mason will get down a lot at the races and we travel in a van with a bed so it allows Mason to lay down during the day.”
Some parents might be scared watching their young child riding a motocross bike on a challenging course. But, Sarah said her real apprehension centers on the course Mason’s ailments currently have him on and for any surprises that may come up surrounding those challenges. “It is scary not to know what Mason’s future holds. Mason still suffers from pain in his back, bladder and bowel issues. We are unsure what the future holds but we will make the best of it for Mason.”
Though the trip to Columbus may not be as fun as a trip to another race track for Mason, Sarah says she and Adam have a simple message for volunteers & supporters of the House. “Thank you for all you do. When a family is going through a scary time in their lives, the Ronald McDonald House is a light in the darkness. It is a wonderful atmosphere for the kids and we could not be more thankful for it helping Mason through the tough times. Mason has a lot of anxiety with doctors and hospital. The House makes his experience a lot better.”
Click here to see the viral video of Mason next to his brother at a starting gate that’s been seen eight million times. Safe travels, Mason and family.
The following article is based on answers from an e-mail interview translated from Polish to English.
Back in his home country of Poland, Marcel Samol wasn’t given very good odds of surviving a brain tumor that’s known as one of the most aggressive in children. Embryonal tumors with multilayered rosettes, otherwise known at ETMR, occurs in children aged 4 and under, mostly in children under 2 and is fatal 75% of the time. “I will also add the fact that in Poland they confused Marcel’s diagnosis,” says Karolina Brenk, Marcel’s mother. She and Marcel’s father, Artur, then began looking for help abroad. Karolina says, “Professor Jonathan Finlay from Nationwide Children’s Hospital came to the rescue,” adding, “He gave us a light in the tunnel and thanks to him we also knew the correct diagnosis. After 2 months since Marcel became ill we were already in the USA and Marcel started treatment.” Money was the biggest obstacle for Marcel’s parents, needing $850,000 for Marcel’s treatment at NCH. But they were able to get tremendous support from their community back home. “We managed to collect the entire amount in just 13 days and on January 19 we flew out for a new life.”
Karolina says they learned about our Ronald McDonald House from another family from Poland who had stayed previously. The family was relieved they could stay right next to the hospital and wouldn’t have to have another huge expense of having to pay for a place while staying in Columbus. As Karolina describes it, staying at our House did take some getting used to. A few things were different from back in Poland. “First of all, we were surprised that there are no quilts with bedding, only bedspreads.”
Marcel and his family have been staying with us for about 4 months and will need to stay for a few more months. Karolina says Artur is also very happy that they’ve found a place here. She says, “during this hard period, we have a piece of “home””. She writes that the family really enjoys the family kitchens the most pointing out, with a smiley face, “We can cook our Polish dishes here because we don’t like American food.” Karolina says another favorite spot at the House has been the big back yard, which has been very important because the family doesn’t have the ability to leave the hospital campus during the pandemic.
As so many families often do, Marcel celebrated a very special day while staying at the House recently. He turned one year old at the beginning of May and our family activities manager, Abigail Brumme, was determined to help the family make sure Marcel had a traditional Polish first birthday. It was truly a momentous occasion with a cake donated by local bakery, The End Dessert Company, sparkling juice, and presents. Karolina says this will be a very special memory of their time staying at our House. “It was magical and beautiful! But above all, Marcel was smiling all the time and that was our goal!” Due to the need for
When asked what she would like to tell our community of staff, volunteers, & donors if she was in a room with everyone, she said, “I would like them to know that there are people here who are open-hearted to help families in this difficult time. Certainly, thank each one individually and hug each for how wonderful the work they do. Not everyone is able to sacrifice themselves and give their heart to help people. It is a beautiful gift and certainly each of them will be rewarded in their lives for the beautiful deeds they do. I would like to tell them that they are great! Great and thanks to people like them – we parents can peacefully fight for the lives of our children, for which we will be grateful for the rest of our lives. 🙂 ”
As for the future prognosis for Marcel, Karolina says, “Prospects for the future, we hope that they are the best because Marcel is a brave boy and treatment has gone very well, but with cancer you can never be sure. However, we live with good hope and we stick to it.” She ends her note to us with, “Pozdrawiam serdecznie!” or Best wishes!
We certainly wish the best for Marcel, Karolina, & Artur too.
Two frequent guests to our Ronald McDonald House have become close friends over the years as they’ve crossed paths at our House several times. Ashton Zari and Christin Love are always having fundraisers to give back to their “home away from home”. Now they’re working together to raise money for the House with a virtual art auction. Click here to see the story by our own Red Shoe Society member, Matt Barnes on NBC4.
To check out the art pieces these two have created along with Xander Love (no relation to Christin), click here before the end of the month when the auction ends.
Eight-year-old Bianca of Monroe County, West Virginia loves to dance. Her mother, Cortney White, says Bianca is especially fond of ballet, jazz and hip-hop. When Bianca was diagnosed with Leukemia last October, Cortney says the news came as a sudden and complete shock. “I never realized the importance and significance of the small things that I took for granted until they were stripped from our life in one afternoon.” Even now, you might not realize the active gymnast and artist is in a battle against cancer. Cortney says of her daughter, “She has fought this horrible disease with beauty and grace. I feel so fortunate and blessed to spend every day with the happiest and the most positive person I know. She is always smiling and laughing. She brightens my days.”
Bianca and her family started on this medical journey when Bianca got her diagnosis at CAMC Women & Children’s Hospital in Charleston, West Virginia. Cortney says, “Immediately, I knew that I had to find her the best possible treatment and facility. I started researching and Nationwide Children’s Hospital was ranked #4 in the nation for children’s cancer hospitals.” Cortney says they felt fortunate to have such a world-renowned hospital in a neighboring state. She arranged for Bianca to be transferred the very next day after she was diagnosed.
Cortney says when they arrived in Columbus, she immediately felt better. “I knew this was where we needed to be.” It was from a hospital social worker that Cortney found out about the Ronald McDonald House. She says she wasn’t familiar with RMHC, but when she learned about the House across the street from the hospital, she was relieved. “Hearing that Bianca and I would have a place to call home during treatment gave me hope,” she exclaimed. “I had no idea such facilities existed. It still seems unreal to me that the generosity of volunteers and donors have made it possible for my family to stay close next door to the hospital, while receiving treatment.”
Though Bianca’s grandmother, her father, and brother have all stayed at the House at different times with Bianca since they arrived last fall, the coronavirus forced the House to make limitations on the number of guests who could stay beginning in March. Cortney admits it’s been hard leaving Bianca’s six-year-old brother Brandon back on the family’s farm for weeks on end. She knows it’s also been a challenge for Bianca to be away from her home, family, and friends for great lengths of time. But, she adds, “The Ronald McDonald House has given us the opportunity to establish a home away from home. We Facetime, text, and Bianca loves SnapChat to communicate with her family and close friends daily.” Cortney appreciates the measures the House has taken to keep everyone safe during these unprecedented times. “Everyone is wearing a mask and performing social distancing to keep everyone safe during this pandemic. The Ronald McDonald House is following the same protocol as Nationwide Children’s Hospital, which makes me feel like I’m bringing my daughter into a safe environment.”
Cortney believes staying at the House has had an impact on Bianca’s treatment too. “Staying here, at the Ronald McDonald House, has helped my daughter receive the best of care. She goes to the hospital Monday thru Friday for infusion chemotherapy.” “Without the House,” Cortney says, “…our journey, I’m sure, would have been a lot different. I am forever grateful and thankful that we are here, and my daughter is receiving the best care possible. It is truly been a blessing.”
Though she and her daughter are here on a health journey that’s been tough, Cortney points out that her family is grateful for having enjoyed some special, pleasant memories while staying at the House. “During Christmas, Bianca enjoyed seeing the Grinch and Cindy Lou Who!” Cortney continues, “We love seeing the different decorations on display during the holidays… The atmosphere is one of joy and kindness here… it’s a beautiful thing to witness.”
What’s next? Cortney answers, “Our dream is for Bianca to be completely healed.” Cortney explains, “She looks forward to her last day of chemo when she can ring the bell and celebrate her victory. We look forward to the day that she can go back to living the life she once did. I want to see her in school with her classmates, take her to dance class and gymnastics. I want her to sleep in her bed at night, exchange Valentines with her friends, participate in the Christmas play at church, and enjoy her animals on the farm.”
Ronald McDonald House Charities of Central Ohio is committed to the health and well being of our community. Our team is working diligently to address concerns with the spread of COVID-19 (Coronavirus). In an effort to maintain the safety of our community, we have suspended non-essential volunteer groups. In addition, many meal groups have cancelled or rescheduled for a later date. As you know, the Ronald McDonald House and Ronald McDonald Family Room are completely dependent upon volunteerism to operate.
In these challenging times, we are fortunate to have many people asking how they can help us at RMHC. If you are interested in helping us provide meals to guests of the Ronald McDonald House, please consider making a donation. To learn more about supporting the meal program, called Team Cuisine, please email Katherine.Becker@RMHC-CentralOhio.org. To make a financial donation to support our operations, please visit rmhc-centralohio.org/donation-form/.
In addition, RMHC of Central Ohio has postponed our Volunteer Appreciation Dinner and Handbag HULLABALOO! Dublin in compliance with Governor DeWine’s Executive Order. We will be working with our event committees to announce the rescheduled dates for those events as they become available.
Please know that we sincerely appreciate the support of our community, and look forward to the day that we can open our doors once again to volunteer groups.
RMHC of Central Ohio