By Dan Wyatt, Cardinal Health Employee
Beginning in January of 2014 my daughter, Riley, began to suffer from continual illnesses. After almost 2 months of constant doctors’ visits, she was finally diagnosed with HSP (Henoch-Schonlein Purpura). HSP is a form of blood vessel inflammation or vasculitis. HSP affects the small vessels called capillaries in the skin and frequently the kidneys. HSP results in a purplish skin rash associated with joint inflammation (arthritis) and sometimes cramping pain in the abdomen. As with most illnesses, its severity ranges from mild to extreme. Unfortunately we were about to find out Riley will soon be diagnosed with its most severe form.
On Riley’s 9th birthday (March of 2014) we were attempting to celebrate her birthday. We hadn’t even cut her cake when she leaned over to me and said “Daddy, something’s wrong.” Within minutes my wife and I were rushing Riley to Nationwide Children’s Hospital with severe internal bleeding. Within the course of one hour, Riley had lost all the blood in her body, twice. Without knowing the exact point of the internal bleed, numerous tests were being run while she was being given emergency blood transfusions. This is when we were told of the severity of the HSP and the critical situation Riley was now in. She was literally fighting for her life. After what seemed like forever, Riley was finally stabilized and moved into Children’s ICU, where she spent a week recovering. After still more tests, the doctors were not able to find the source of the bleed. She was eventually released with a high dose of steroids, to help with the internal bleeding, a course of 30 days of antibiotics to keep her from picking up any immediate infections, and pain medications.
A year later, Riley still suffers from HSP, however its side effects of the rashes, the severe stomach cramping and joint pain has been greatly reduced. Her specialist at Children’s finally gave the green light to discontinue the steroids and pain medications as of March 1st; and we hope that by the end of this year, she will be discharged from his care. At this year’s birthday celebration, Riley was surrounded by family and a dozen of her closest girlfriends! It truly was a celebration of her life!
I have been volunteering at the Columbus Ronald McDonald House for the past couple years and I have always been touched by the stories of those with children spending time at the hospital. After I became one of those parents who spent more time at the hospital, rather than at home with their child, volunteering here took on a whole new meaning. I grew even fonder of the services that both Nationwide Children’s Hospital and the Columbus Ronald McDonald House provide to those in need.