By Dan Wyatt, Cardinal Health Employee
Beginning in January of 2014 my daughter, Riley, began to suffer from continual illnesses. After almost 2 months of constant doctors’ visits, she was finally diagnosed with HSP (Henoch-Schonlein Purpura). HSP is a form of blood vessel inflammation or vasculitis. HSP affects the small vessels called capillaries in the skin and frequently the kidneys. HSP results in a purplish skin rash associated with joint inflammation (arthritis) and sometimes cramping pain in the abdomen. As with most illnesses, its severity ranges from mild to extreme. Unfortunately we were about to find out Riley will soon be diagnosed with its most severe form.
On Riley’s 9th birthday (March of 2014) we were attempting to celebrate her birthday. We hadn’t even cut her cake when she leaned over to me and said “Daddy, something’s wrong.” Within minutes my wife and I were rushing Riley to Nationwide Children’s Hospital with severe internal bleeding. Within the course of one hour, Riley had lost all the blood in her body, twice. Without knowing the exact point of the internal bleed, numerous tests were being run while she was being given emergency blood transfusions. This is when we were told of the severity of the HSP and the critical situation Riley was now in. She was literally fighting for her life. After what seemed like forever, Riley was finally stabilized and moved into Children’s ICU, where she spent a week recovering. After still more tests, the doctors were not able to find the source of the bleed. She was eventually released with a high dose of steroids, to help with the internal bleeding, a course of 30 days of antibiotics to keep her from picking up any immediate infections, and pain medications.
A year later, Riley still suffers from HSP, however its side effects of the rashes, the severe stomach cramping and joint pain has been greatly reduced. Her specialist at Children’s finally gave the green light to discontinue the steroids and pain medications as of March 1st; and we hope that by the end of this year, she will be discharged from his care. At this year’s birthday celebration, Riley was surrounded by family and a dozen of her closest girlfriends! It truly was a celebration of her life!
I have been volunteering at the Columbus Ronald McDonald House for the past couple years and I have always been touched by the stories of those with children spending time at the hospital. After I became one of those parents who spent more time at the hospital, rather than at home with their child, volunteering here took on a whole new meaning. I grew even fonder of the services that both Nationwide Children’s Hospital and the Columbus Ronald McDonald House provide to those in need.
By Megan Evans, Grants Administrator, The Licking County Foundation
The Licking County Foundation is pleased to partner with the Ronald McDonald House to support the Helping Hands Program designed to help support nights of rest for families of seriously-ill children. Bordering Franklin County to the east, Licking County residents often find themselves in need of a place to call home when their young ones require care at Nationwide Children’s Hospital. The Licking County Foundation, founded in 1956 to improve the quality of life for all citizens of Licking County, is partnering with the Ronald McDonald House for a sixth year to support Licking County families in need of a place to stay.
Licking County consistently ranks within the top five counties in Ohio to use Ronald McDonald House’s services. Although most Licking County residents are within an hour drive of Nationwide Children’s Hospital, for many families with a seriously ill child, having the ability to stay at the Ronald McDonald House while their child receives treatment directly across the street provides a source of relief. Staying at the Ronald McDonald House provides Licking County residents the precious gift of time with their child and saves them countless hours they would otherwise use commuting to and from the hospital.
Since 2006, Ronald McDonald House has provided services to over 1,200 families from Licking County with over 10,000 nights of rest. The superior facilities at the Ronald McDonald House give families the ability to stay together and be close to their ill child, allowing them to focus on what is most important—the successful recovery of their child. We truly appreciate our partnership with the Ronald McDonald House and their support of the Foundation’s mission to improve the quality of life for all citizens of Licking County, one family at a time.
By Carly Damman
February 14th, 2015 marked a special day for both Ohio University students and the Columbus Ronald McDonald House. On that day, over 130 students came together to dance for 12 hours straight while raising a total of $18,173 dollars for Ronald McDonald House families. February 14th marked the first ever dance marathon at Ohio University and the first ever dance marathon to raise support for RMHC of Central Ohio.
As an eager and ambitious college senior, I decided to help start BobcaThon at Ohio University. Little did I know it would land me a big girl job one day! BobcaThon became a reality due to hard work, passionate students and a desire to help the families staying at the Ronald McDonald House. What a bittersweet moment for me when February 14th finally came around and the idea of a dance marathon became reality! Transitioning from being a student who helped plan the event to a full-time staff member at the Ronald McDonald House was a bit of a challenge for me at first. However, as soon as I stepped foot in the Student Center at Ohio University and saw the event come to life, the challenge was over and the celebration could begin! The students did such an incredible job honoring the families and embracing the atmosphere of a true dance marathon.
Reflecting on my tough transition from student to full-time staff member, I am repeatedly reminded of the transition families staying with us have to make. Can you imagine leaving your home, your friends, your family and your job to spend weeks, even months, at a hospital? It’s surely not an easy transition. It’s probably one of the hardest transitions a family ever has to make. My transition pales in comparison! I am so honored and so humbled to work for an organization that strives to serve families of seriously-ill children in their deepest time of need each and every day. I am beyond thrilled to continue working alongside BobcaThon students to make the dance marathon more successful each year.
For me, each hour of the 12 hour dance marathon symbolized an hour of anticipation for an RMHC family. An hour of waiting during a child’s surgery, an hour of celebration after a cure is found, an hour of praying for positive test results or an hour spent anxiously awaiting next steps on an already long journey. I admire the stamina of each BobcaThon dancer to stand on their feet for 12 hours straight but that’s nothing compared to the strength of our Ronald McDonald House families.
Remember to always take time to dance for the amazing families that stay at the Columbus Ronald McDonald House!
Dear Ronald McDonald House,
Our son was born on March 4th at Fairfield Medical Center. He was in respiratory distress and was immediately transported to Nationwide Children’s Hospital J4 NICU. I was not able to join him because of my C-Section until March 6th. One of the hardest things I have ever done was watch them take my new baby away and known I would not get to touch, hold, or even see him for at least two more days. After I was discharged, my husband and I drove immediately to Nationwide Children’s Hospital.
The social worker at the hospital had mentioned the Ronald McDonald House to my husband and by the time I was discharged and ready to travel to Columbus, they had a room available for us. What a blessing it was to be right there the whole time! My husband and I were able to take turns spending time in the NICU with our new baby and at the Columbus Ronald McDonald House with our four and six year olds. It was truly a blessing to be able to have our entire family together during this very trying and exhausting time we spent in the NICU. Being right across the street from the hospital allowed me to be able to nurse my baby almost around the clock and provide some much needed kangaroo care for both of us. Thank you for everything!
The Hayes Family
Jess Uithoven is an extraordinary young lady. She might also be the Columbus Ronald McDonald House’s most engaged social media follower. Three years ago, she was diagnosed with a rare condition called collagenous gastritis. This condition causes her stomach lining to form collagen bands and become hardened, making it less mobile. The gastritis has caused gastroperisis, meaning the stomach is paralyzed and doesn’t move food the way it should. Both conditions cause nausea at a constant level. When Jess was diagnosed, there were only 50 diagnosed cases worldwide, and half of those cases were children. Doctors do not know the cause of it and there is no cure. Jess has tried every medication available for treatment of her symptoms and there is no relief.
In 2013, Jess and her mom, Louise, left their home in Montana to try more therapies at the Mayo Clinic, but those treatments were unsuccessful. The Mayo Clinic referred the Uithovens to Nationwide Children’s Hospital because of their expertise in the gastrointestinal field. Through more testing, doctors determined Jess would be an excellent candidate for the gastric stimulator. This stimulator tells the stomach to empty. Jess has found that the stimulator helps, but it will be a long process to find the right setting to alleviate more of the nausea. She is on a long road to recovery, and the Columbus Ronald McDonald House has become a second home to her and her mom while Jess is receiving treatment.
Jess and Louise first came to Nationwide Children’s Hospital in May of 2014 and they have been back four times since then. Some of their trips have been a few days and some have been up to three weeks. Each time, they have stayed at the Columbus Ronald McDonald House. “This place is a second home to us. We love the homey feeling here. It is like a fancy hotel room put into a home. We love being able to do a variety of activities while we are there. We play pool, watch movies in the theater, read in the library – Jess loves to sit on the oversized bears; we also love the rooftop garden when the weather is nice. We’ve gotten to know a lot of the people that work and volunteer there. Meika is one of our favorite people there – she always has kind words for us, stops to chat, and we stay in touch with her outside of our visits. We also have been fortunate enough to get to go to a Columbus Blue Jackets game! Everyone at the House is so nice and makes sure you always have what you need.”
Without the Columbus Ronald McDonald House, Jess and Louise say they wouldn’t be able to afford the trips from Montana to Ohio. The Uithovens appreciate the meals, laundry, and “just doing life while we are there.” They say “the Ronald McDonald House takes care of all of that!”
By Erica Hollar
Five years ago after finishing law school, I moved back to Columbus. School was over, and I was ready to start my career. Luckily I had found a job, but at the same time, I was looking for something to fulfill my desire to give back to the community. When we were younger, my mom had always instilled in my sister and I the idea of “paying it forward.” I finally felt like I was at a point where it was time for me to start giving to others. My mom, who is CEO and Executive Director of the Ronald McDonald House told me about the Red Shoe Society. I thought it would be a great way to not only meet new people, but to also serve an organization my family had become so passionate about.
I joined that year, and since then I have held different offices, attended the best fundraisers in the city, helped others, and met some of the greatest people and some of my best friends. I joined the Red Shoe Society with the idea of helping others; however, I had no idea that by helping others I would be helping myself. When I participate in events through the Red Shoe Society, I feel a sense of fulfillment unlike any other. My personal favorite activity is serving breakfast on Saturday mornings. Something that is so easy, fun and simple for us means the world to the families staying at the House. As we all know, life gets hectic, and that is without a sick kid in the hospital. It’s nice to be able to bring some simplicity to these families that are going through turmoil.
I’m thankful to not only be a part of, but also have a leadership role, in the best young professional group in the city. As life gets hectic, I encourage each of us to remember why we do what we do. A small part of your day means the world to these families! Embrace each opportunity presented to you through the Red Shoe Society and the Ronald McDonald House. The impact that it will have on the families served, as well as you, will be monumental. I promise!
By Darla Stover
As I walk the halls of the Ronald McDonald House, I am amazed every day at the support coming from the Columbus community. Ronald McDonald House Charities of Central Ohio is so fortunate to be located in such a philanthropic city. As of October 2014, the 1.8 million people in the Columbus Metropolitan Area gave $1.08 billion to charity. The philanthropic spirit of Columbus is very evident at RMHC.
Throughout the House are the names of companies, foundations, individuals and organizations that have chosen to become a permanent part of the Ronald McDonald House. On the guest rooms are names of both permanent and annual supporters of the House. The maze of hallways and 137 guest rooms proudly boast the names of those who have chosen to become long-term supporters of RMH. The rooftop patio overlooking the courtyard holds pavers with meaningful quotes, memorials, company logos, volunteers, families and individuals that have left a legacy atop the expansion.
Throughout the courtyard, gardens and play space, large rocks with supporters names inscribed in them dot the landscape. These donors were instrumental in leading a successful capital campaign to build the expansion that opened in September 2014. The hallways themselves, as well as the community rooms, boast of the donors who adopted them.
These people who walk through the front doors of the Ronald McDonald House immediately feel the energy of the supporters-families, volunteers, corporations, foundations, individuals, groups and staff members. How can I help? What can I do? What can I give? These are questions we hear all the time at RMH. The partnerships and friendships created at the Ronald McDonald House are long-lasting, meaningful and impactful. Corporate partners extend their reach to their foundations, employees and clients. Individuals invite friends from their social circles and associates from their work to be a part of this community of families all caring for their hospitalized children at their home-away-from-home.
Ethan Graham was born at full-term and looked so perfect. His parents, Ryan and Ashley Graham, could not wait to take him home to see his siblings. A couple weeks later, Ethan was not able to have any bowel movements, so his parents took him to the doctor. Ethan’s doctors knew they weren’t able to give the answers the Graham family was looking for, so they sent Ethan from Kentucky to Vanderbilt Children’s Hospital in Nashville. Vanderbilt could not give any answers as to what was going on with Ethan, so they sent him to Kosair Children’s Hospital in Louisville, Kentucky. While at Kosair, Ryan and Ashley found out Ethan had a bleeding disorder, so they sent Ethan and his parents to Nationwide Children’s Hospital. The family had a nurse refer them to the Columbus Ronald McDonald House, and they arrived right before Christmas of 2013.
Since Ethan has been treated at Nationwide Children’s Hospital, he has undergone three biopsies and two scopes. He has all of the symptoms for Cystic Fibrosis, but this little boy has not tested positive for this disease, so his diagnosis is still unknown. This has resulted in a lot of travel from the Graham family’s home in Kentucky to the Columbus Ronald McDonald House. “We’ve met a lot of families over at Nationwide Children’s Hospital, only to find out the family we have been talking to is also staying at the Columbus Ronald McDonald House. We met Story Hill and her parents (an amazing little girl whose story we told in 2014), and learned just how similar our children’s lives were—from living in Kentucky, to having the scary experience of having our children lifeflighted from Kentucky to Nationwide Children’s Hospital—it has been wonderful to know someone who has common ground that can relate to our family’s story.”
Ashley said she is continually blown away by the amenities at the Columbus Ronald McDonald House. “We’ve taken so many pictures of Ethan in the library, so it has been fun to see him grow and change. The movie theatre has also been a lifesaver, because Ethan wants to stay up while his dad may want to sleep, so Ethan and I make our way to watch movies there late at night. I was here before, during, and after the expansion. I was here last Friday when they opened the NHL All-Star Tree House—what an amazing space! We love the Columbus Ronald McDonald House because of the volunteers and the sense of community. From listening to a little girl sing “Let It Go” from Frozen during dinner and applauding her for her performance, to bonding with other families in all of the beautiful common spaces, there is no place like the Ronald McDonald House. We are truly grateful for this place!”
We thank you from the bottom of our hearts. Our grandson, Simon, came to Nationwide Children’s Hospital for care and we spent two weeks in the NICU. Simon’s parents and us (the grandparents) came from Nebraska and took turns staying with Simon and at the Columbus Ronald McDonald House.
The location and accommodations were so far above and beyond anything we would have anticipated or expected. The homemade meals were greatly appreciated by all of us.
This is a beautiful and compassionate gift you provide families at a scary time. There aren’t words to adequately express how comforting it is to have a place like this during the hospital stay. Please know it is such a good thing you are doing here every day!
By Mackenzie Schuler
For anyone living in the central Ohio area, you know this weekend is a major weekend for Columbus. If you are not familiar with what is happening, let me bring you up to speed: The 2015 NHL All-Star Game is happening at Nationwide Arena! This is a huge opportunity for Columbus to show the world why we are an incredible city that is the best kept secret.
One of the best kept secrets of The 2015 NHL All-Star Game is the Legacy project. In each city that The NHL All-Star Game is held, the League works with a local charity to complete a meaningful project. For this year’s charity project, several central Ohio charitable organizations submitted a proposal for what they would like commissioned for their charity.
When we submitted our proposal, I honestly had no idea what to expect. It sounded amazing, but I could not even wrap my mind around what we were going to be doing. We were in the midst of our grand opening, which has now made us the largest Ronald McDonald House in the world. I was not sure the NHL would even choose the Columbus Ronald McDonald House for this project. However, I was proven wrong, and the Columbus Ronald McDonald House was fortunate enough to have been chosen to have our project commissioned for The 2015 NHL All-Star Game.
Columbus is an incredibly generous city that has the support of so many organizations. The NHL saw the generosity of the Columbus Blue Jackets, an organization that has proven to be a vital partner to the Columbus Ronald McDonald House time and time again. The Columbus Blue Jackets and the Columbus Blue Jackets Foundation have supported us by adopting rooms within the Columbus Ronald McDonald House (have you seen the Jacket Zone in our basement or The Lady Jackets’ Princess Room?!), bringing their team to the House to play games with our families, throwing an amazing princess party for our little girls, and helping with landscaping and other projects. The Columbus Blue Jackets, the Columbus Blue Jacket Foundation, and The Lady Jackets are truly helping families with seriously-ill children at the House. Without their support, we could not make a difference in the lives of these families every day. We are grateful.
While I am sworn to secrecy to not tell you about the NHL All-Star Legacy Project, I can tell you this: you are going to be blown away. Stay tuned for the unveiling on Friday, January 23rd at 9:30 a.m.